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living with irritable bowel syndrome ?

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I've been suffering with a constant distended abdomen for approx 10 months, every single day morning till night, when I eat it would be even bigger. During that time I've eaten as normal although not … Read More
tali00 Avatar
2m, 2w agoPosted 2 months, 2 weeks ago
I've been suffering with a constant distended abdomen for approx 10 months, every single day morning till night, when I eat it would be even bigger. During that time I've eaten as normal although not had a desire to eat..no hunger pains in that whole 10 months. SO FRUSTRATING as I love food. My stools had also been normal during that time.

6 months ago I developed acid reflux and excess mucus in the throat after eating. went to the gp who gave me acid reflux pills which I took for a month then stopped as id run out and went for a H pylori stool test which came back fine. The acid reflux has not returned since.

However recently in the last week I've had a complete loss of appetite, I cant eat a whole meal. My stools have changed to quite thin and soft/diarrhea. I've been back to the gp twice (5 times in total) and they still think its IBS.

What worries me is bowel cancer runs in the family and I'm worried its that. The gp wont proceed with a colonoscopy because he says im too young for cancer (34). The other reason he said was my blood tests came back 100% perfect which generally they'd only refer patients for a colonoscopy if the tests came back showing anemia.

I don't have the usual ibs symptoms of gassy, abdomen pains...etc.

As it stands I have IBS according to my gp. Any other sufferers on the board with same/similar symptoms?.

Sorry for the long winded write-up.
tali00 Avatar
2m, 2w agoPosted 2 months, 2 weeks ago
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Responses/page:
#1
go see another gp
#2
qwerty212
go see another gp


I've been to the GP 5 times and seen 5 different GP's. My surgery is odd, you don't get the same gp every time.
#3
Too young for cancer! That's unbelievable, people get cancer at any age, my partner died of cancer at age 34 after he spent 6 months being told he had heartburn.. . Go back and insist on seeing a different doctor who is in the field of your issue. Tell them it's unbareable and you need to see someone who knows more about your ins and symptoms.. I really don't think hukd is the best place to be asking for serious medical advice.. go back and demand further appointment with someone who knows more.. tell the reception what's wrong they should try to book you in with someone who specialises in this kind of thing. Good luck
#4
If it is IBS,have a look into ACV(apple cider vinegar) for it,look for the one with the 'mother'.
#5
By your age I had two colonoscopies (tip, always opt for sedation) and a barium enema. I had a diagnosis of IBS after the barium. IBS symptoms vary greatly between different people and lots of conditions get lumped under the IBS umbrella.

Treatment comes down to managing the different symptoms. Its does seem that you are not happy with the gp's diagnosis, I would go back to them and ask directly for a referral to see a hospital consultant. At least that way you will get a definitive diagnosis.
#6
There are many conditions having similar symptoms and unfortunately many GPs don't have the time or inclination to properly investigate. IBS is commonly given as a catch-all diagnosis.

You’ve probably already Googled the symptoms and self-diagnosed either Crohn’s disease, Coeliacs, Lactose intolerance, stomach ulcer, hiatus hernia or bowel cancer. That’s before you start looking at ‘tropical’ ailments you may have picked up, or vitamin/mineral deficiencies.

Another symptom you didn’t mention was blood in your stools.

As the symptoms have been presenting for almost a year, you are well within your rights to insist on referral to see a gastroenterologist.

Don’t get too hung up on it being bowel cancer – there a so many other things it could be.

Go and see your GP again and take your best no-nonsense friend with you.
#7
Drink kefir milk at large Tesco
#8
I find

"I am not leaving your Surgery until I have a referral to a gastroenterologist (or whatever)" works.

Good luck and try not to worry too much.

Edited By: getmeone on Apr 11, 2017 14:36
#9
getmeone
I find
"I am not leaving your Surgery until I have a referral to a gastroenterologist (or whatever)" works.
Good luck and try not to worry too much.
This.

If you want a colonoscopy, demand one, if a Dr suggest an alternative, say no, if a DR says wait a little longer say you have waited long enough and the treatment is ineffective. You have to be very direct and insistent with DRs of any field.
#10
First, I would ask if you are a male or a female. Second, your age. Based on your answers, I'd suggest trying the following:
Play with your diet and see if it changes anything;
See the urologist/rectal clinic;
Get the scans of the area;
Have a faecal blood test.

The exact approach and order need to be adjusted to your gender and age as they are factors in assessing the probability. IBS may be a symptom of other disorders, which are hard to diagnose.

If you are offered a colonoscopy (you'll get to this sooner or later), ask for CT colonoscopy as this will take a broad picture of all organs. The disgusting stuff you'll have to drink is the same for both CT and traditional.
#11
My problem I have discovered is that citric acid doesn t do me any favours and that's an understatement too. I wish I could post a pic of my swollen stomach a perfectly formed 9 months pregnant look lol. I'm 60 and female. Citric acid is in most things unfortunately as it is a preservative even in most soft drinks.

When i have things with citric acid in my bowels are very sluggish hence putting on weight and combined with my swollen stomach it's just great.....not. I wasn t able to lose an ounce never mind a pound but when I started on a citric acid free regime I lost half a stone in a couple of weeks.
#12
I'd change the GP surgery all together sometimes the management sets a policy and all GPs have to follow..
if I'm told I'm too young for cancer I'd definitely go elsewhere as it's a very false statement.

change of bowel habit that lasts for sometime SHOULD be investigated, and should be referred to Gastro specialist in hospital for further tests including either CT colonoscopy or full-on colonoscopy which are not that great of a deal and just common investigating procedures.

unfortunately NHS is trying to save as much money as they can and some GPs/practices are too carried away,not referring people to the important diagnosis tests when they should.they only do that when certain symptoms are present which can be late.

that being said for any problem gut related, you can try taking probiotics, they can really help with a lot of symptoms from stool problems to indigestion etc and there is no harm.try buying from amazon,I recommend Nutrizing brand.give it a try for few weeks, in the meantime try to insist that your GP refers you to Gastro,if refused change GP clinic.
no need to worry too much,just make sure they refer you to what you are entitled to : proper investigation for medical issues.


Edited By: Tequila on Apr 11, 2017 15:50
#13
I too have IBS and have been to many many Doctors. Didn't really get any where.
I now manage it relatively easily, and it's become the norm.
You should keep a food diary and try and work out trigger foods, cutting out/down on bread will help aswell. Try researching the FODMAP diet aswell, I highly recommend having a browse on Pinterest for details.

Edited By: INDUSTRYHATER on Apr 11, 2017 17:54: .
#14
Just_passing_through
There are many conditions having similar symptoms and unfortunately many GPs don't have the time or inclination to properly investigate. IBS is commonly given as a catch-all diagnosis.

You’ve probably already Googled the symptoms and self-diagnosed either Crohn’s disease, Coeliacs, Lactose intolerance, stomach ulcer, hiatus hernia or bowel cancer. That’s before you start looking at ‘tropical’ ailments you may have picked up, or vitamin/mineral deficiencies.

Another symptom you didn’t mention was blood in your stools.

As the symptoms have been presenting for almost a year, you are well within your rights to insist on referral to see a gastroenterologist.

Don’t get too hung up on it being bowel cancer – there a so many other things it could be.

Go and see your GP again and take your best no-nonsense friend with you.


I completely agree with everything you have wrote!
#15
INDUSTRYHATER
I too have IBS and have been to many many Doctors. Didn't really get any where.
I now manage it relatively easily, and it's become the norm.
You should keep a food diary and try and work out trigger foods, cutting out/down on bread will help aswell. Try researching the FODMAP diet aswell, I highly recommend having a browse on Pinterest for details.

Thats the thing...

my fullness feeling and no hunger pangs is occurring regardless what I eat. Theres no food that I eat that changes the way I feel.

That is why I suspect it isnt ibs.

I try to explain this to the GP but it goes on deaf ears. If I write a food diary I will only be putting into text that my symptoms are identical before and after eating.

I have cut out dairy and other things and nothing has improved it changed in any way.
#16
tali00
INDUSTRYHATER
I too have IBS and have been to many many Doctors. Didn't really get any where.
I now manage it relatively easily, and it's become the norm.
You should keep a food diary and try and work out trigger foods, cutting out/down on bread will help aswell. Try researching the FODMAP diet aswell, I highly recommend having a browse on Pinterest for details.

Thats the thing...

my fullness feeling and no hunger pangs is occurring regardless what I eat. Theres no food that I eat that changes the way I feel.

That is why I suspect it isnt ibs.

I try to explain this to the GP but it goes on deaf ears. If I write a food diary I will only be putting into text that my symptoms are identical before and after eating.

I have cut out dairy and other things and nothing has improved it changed in any way.


if it is IBS then one of the causes can be stress and anxiety, the fact you are worrying it could be bowel cancer could be part of the cause. As someone else said, take a friend or relative with you, insist on being referring, tell your gp it's affecting your everyday life.

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