I am Praying for some advice.. - HotUKDeals
We use cookie files to improve site functionality and personalisation. By continuing to use HUKD, you accept our cookie and privacy policy.
Get the HUKD app free at Google Play

Search Error

An error occurred when searching, please try again!

Login / Sign UpSubmit
Expired

I am Praying for some advice..

leelee6781 Avatar
banned2y, 6m agoPosted 2 years, 6 months ago
I need some help and advice please. My mum is 52, she has Crohns Disease, reflux oesophagitis and suffers with anxiety and her health is deteriorating slowly. She only just manages to get to work and back which is Monday - Friday Getting up at 6am leaving the house at 7 am getting to work for 8:50 am. works until 4:30pm as she has reduced her own lunch break so she can get home for 6:15 pm. She's on and off steroids every month, healthy food irritates her illness, her weight and appetite is no good. She's struggling to meet ends meet with her house bills and she's been really ill since last Wednesday. Today at the doctors they said she has a Polyp in her bowel. She's worrying and stressing so much. Work are making her feel guilty for being off sick. I haven't a clue what to do ? I just want a magic wand. Are there any doctors I can take her to ? Special clinics ? Insurance she can take out that will help her with bills or cover pre existing conditions ? Any charities that can help or advise. I really don't know what to do....
Sorry to post this on here but I've got no other ideas.
Thanks,
Lee

Shared Via The HUKD App For Android.
leelee6781 Avatar
banned2y, 6m agoPosted 2 years, 6 months ago
Options

All Responses

(27) Jump to unreadPost an answer
Responses/page:
#1
How sad. Sorry to read this. I would check your mum's contract of work to ensure that you are aware of her sickness terms and conditions. Is she in a union? NaMaybe she should join one as they can offer employment advice as well as other benefits. What about a mortgage payment holiday if she owns her own house. That could take a bit of financial pressure of or even securing a new mortgage deal. Good luck and wishing your mum all the best. :-)
#2
not sure if ACAS would be of any help to you and your mum...CAB could be another one for some advice to see if theres anything she can do regarding the financial issues....other than that i dont know how to help you,hopefully someone with more experience can give you some better and much needed advise x
#3
A big trigger for crohns flare ups is stress/anxiety so it's a bit of a viscous circle. The gp can refer her to a gastro doctor. Gp can also arrange counselling sessions and if appropriate prescribe something for her mood. I hope things get better for you and your mum.
#4
Unfortunately insurance companies will not provide cover for pre-existing conditions ( they check medical records anyway) and you are likely to have to be clear a year without full indepth past-history analysis to see if you did have it before. A Union would online provide advice or support for issues since joining. However, I would speak to the employer and notify them of her problems. Is it to the point where she should be classified as "disabled" by a doctor perhaps. charity wise, there is a few Chrons diesese charities: consider http://www.crohnsandcolitis.org.uk/contact-redirect.


Please go to the website. They can offer assistance:
The services are designed to provide information and support, regardless of your situation or background. These include:

People who have recently been diagnosed with IBD and those living with the condition for a number of years
Friends, relatives, partners and carers
Young people and the parents of children who have IBD
People who are looking for information about the condition and the impact that it has on day-to-day life
Those who need emotional support
Anyone who needs help with practical matters, such as finding out about, and applying for, disability benefits

0845 130 2233 is the telephone number

God bless
banned#5
bellotsa
How sad. Sorry to read this. I would check your mum's contract of work to ensure that you are aware of her sickness terms and conditions. Is she in a union? NaMaybe she should join one as they can offer employment advice as well as other benefits. What about a mortgage payment holiday if she owns her own house. That could take a bit of financial pressure of or even securing a new mortgage deal. Good luck and wishing your mum all the best. :-)

Thanks for your reply. she's on a mortgage holiday but it's about to end and then she's back to square one. I'll get her a membership at a union as there isn't one in her work place.
banned#6
try speaking to someone at http://www.ageuk.org.uk/
#7
hi lee, i work in gastroenterology, firstly i wouldnt stress too much regarding the polyp found in the bowel as most people with crohns and ulcerative colitis happen to have lots of inflammatory polyps in the bowel ,they are probably insignificant but if she at all worried i would contact her consultant and ask re the nature of the polyp . there is an association connected with crohns and colitis it is called NACC..... http://www.nacc.org.uk/knockout/knockout.asp this is a link to the website.

Edited By: singer on Jun 23, 2014 19:33
#8
Im so sorry to hear this, I can not offer any help or advice but my thoughts and prayers are with your Mam xxx

I hope she gets sorted soon x

Edited By: hocka on Jun 23, 2014 19:35
#9
hi again lee, i wonder is your mum on any medication called infliximab or adalimumab, they are very good as they work by targeting the protien ,they are expensive but maybe your local consultant /hospital would be amiable to prescribing them unless a very good reason, medically or financially to them not prescribing.


Edited By: singer on Jun 23, 2014 19:41
banned#10
singer
hi lee, i work in gastroenterology, firstly i wouldnt stress too much regarding the polyp found in the bowel as most people with crohns and ulcerative colitis happen to have lots of inflammatory polyps in the bowel ,they are probably insignificant but if she at all worried i would contact her consultant and ask re the nature of the polyp . there is an association connected with crohns and colitis it is called NACC..... http://www.nacc.org.uk/knockout/knockout.asp this is a link to the website.

Thank you. I don't know how to approach her with all your advice and experience.
#11
Has she tried applying for benefit help, like Personal Independence Payments or whatever it is called now? I know people are generally against benefits but this is exactly what they are meant for: to help people who are genuinely in need and struggling to manage.
If she was entitled to even some help then that would help pay the bills or maybe she could reduce her hours a bit.
banned#12
Thank you everyone for taking the time to reply, offer help, advice and support. I have wrote everything down on a paper that may help her . Thanks for the direct links and ideas you have given me.
#13
obviously she has recently had a colonoscopy for them to determine there was a polyp in the large bowel, do you know where it was, and if they did biopsy it , if they did and were unduly worried im sure they would have contacted your mother thru her gp or her consultant by now, as i say i have seen so many people with crohns and ulcerative colitis and sometimes there bowels are carpeted with inflammatory polyps due to the nature of the disease, when there is ulceration in the large bowel due to crohns or colitis and when/if the inflammation starts to recede the body then trys to heal the affected area by the inflammatory method which then as the mucosa heals it causes scarring and polyps at the affected sites
banned#14
Butterbean
Has she tried applying for benefit help, like Personal Independence Payments or whatever it is called now? I know people are generally against benefits but this is exactly what they are meant for: to help people who are genuinely in need and struggling to manage.
If she was entitled to even some help then that would help pay the bills or maybe she could reduce her hours a bit.

she has applied to the disability benefit but they refused her because she can see, hear, walk and talk. They are very strict now. I think until someone in the benefits agency has walked a mile in the shoes of a Crohns Disease sufferer only then will they understand .
#15
i would contact NACC that are a great help tp many of my patients and aid people goin thru some hard times due to the disease, i know of patients getting help with laundry items ..washing machines and dryers and suchlike due to the nature of the disease may catch you out when you least expect it , no toilet around or denied entry to toilets in shops or so
banned#16
singer
obviously she has recently had a colonoscopy for them to determine there was a polyp in the large bowel, do you know where it was, and if they did biopsy it , if they did and were unduly worried im sure they would have contacted your mother thru her gp or her consultant by now, as i say i have seen so many people with crohns and ulcerative colitis and sometimes there bowels are carpeted with inflammatory polyps due to the nature of the disease, when there is ulceration in the large bowel due to crohns or colitis and when/if the inflammation starts to recede the body then trys to heal the affected area by the inflammatory method which then as the mucosa heals it causes scarring and polyps at the affected sites

i didn't know that. That is very interesting. I can't answer your questions sorry as I don't know the ins and outs of today. I do know she hasn't had a biopsy.
banned#17
trisham3838
not sure if ACAS would be of any help to you and your mum...CAB could be another one for some advice to see if theres anything she can do regarding the financial issues....other than that i dont know how to help you,hopefully someone with more experience can give you some better and much needed advise x

She's tried Acas but she works for a Solicitors and they deal with everything you can think of. They do look after her a lot but because my mum and 1 other lady are tge only 2 people in that department it means there's nobody there. In the past the bosses have thrown people out and said don't come back your sacked... so they're the type of company who are not bothered about doing things tge correct way or the repucussions
banned#18
mdekq007
A big trigger for crohns flare ups is stress/anxiety so it's a bit of a viscous circle. The gp can refer her to a gastro doctor. Gp can also arrange counselling sessions and if appropriate prescribe something for her mood. I hope things get better for you and your mum.

She's been referred to counselling but can't attend because of her long days, how tired she gets and how far away she works from home
banned#19
hocka
Im so sorry to hear this, I can not offer any help or advice but my thoughts and prayers are with your Mam xxx

I hope she gets sorted soon x

Thank you for your kind comment
banned#20
singer
i would contact NACC that are a great help tp many of my patients and aid people goin thru some hard times due to the disease, i know of patients getting help with laundry items ..washing machines and dryers and suchlike due to the nature of the disease may catch you out when you least expect it , no toilet around or denied entry to toilets in shops or so
i will sort this out for her tonight and get her a membership. Thank you for your advice and comments :)
#21
if they said she has a polyp ,im sure the seen it under direct vision or maybe by a ct colonography, but as i say, to allay her fears, it will probs be in most cases just an inflammatory polyp.
#22
hocka
Im so sorry to hear this, I can not offer any help or advice but my thoughts and prayers are with your Mam xxx

I hope she gets sorted soon x

+1 Hope your mum gets well soon.
banned#23
singer
if they said she has a polyp ,im sure the seen it under direct vision or maybe by a ct colonography, but as i say, to allay her fears, it will probs be in most cases just an inflammatory polyp.

She's been bleeding from her bum for a week .
banned#24
If I don't reply to anyone it's not me being ignorant, I'm at work until 6am and mobiles are banned in my work place.
Thanks again everyone :)
#25
Your mother may be entitled to DLA now PIP it takes 26 weeks and would need to be assessed if she get entitlement she may also be to use it to get a mobility car which would help if she drives or a member of her family who cares for her who would drive car for her.
banned#26
kaned69
Your mother may be entitled to DLA now PIP it takes 26 weeks and would need to be assessed if she get entitlement she may also be to use it to get a mobility car which would help if she drives or a member of her family who cares for her who would drive car for her.

What does PIP stand for ?
#27
leelee6781
Butterbean
Has she tried applying for benefit help, like Personal Independence Payments or whatever it is called now? I know people are generally against benefits but this is exactly what they are meant for: to help people who are genuinely in need and struggling to manage.
If she was entitled to even some help then that would help pay the bills or maybe she could reduce her hours a bit.

she has applied to the disability benefit but they refused her because she can see, hear, walk and talk. They are very strict now. I think until someone in the benefits agency has walked a mile in the shoes of a Crohns Disease sufferer only then will they understand .


I am sorry to hear about you Mum, regarding most of the comments I am not going to repeat but what I am going to advise is that you must appeal against the disability allowance now called the PIA personal independence allowance. You can get assistance from the welfare benefits team in your local area, usually under the council. I will advise this does take time but your mum's case sounds like she be able to qualify.
I wish you good luck and hope it is not long before your Mum is on the road to recovery, with assistance of disability payments helping out.

Post an Answer

You don't need an account to leave a response. Just enter your email address. We'll keep it private.

...OR log in with your social account

...OR comment using your social account

Thanks for your comment! Keep it up!
We just need to have a quick look and it will be live soon.
The community is happy to hear your opinion! Keep contributing!