I have a very good family friend whos daughter suffers from a very rare syndrome called Joubert Syndrome. At the moment there are approximately 26 people living with this syndrome in the UK. One of the mums has set up a web site for the syndrome, for new families but they need loads more "hits" in order for it to be higher up the rankings in search engines which in turn would make it easier for new families to find the UK help they will need.... so please just have a look at the web site I am not asking for any more than for you to look so they can get the HITS they need.http://www.jsuk.btik.com
I would also be more than grateful if you could forward my request to your friends and family on the likes of Facebook, Bebo, MSN etc.
Thanks guys, I appreciate and Im sure my friend will also appreciate your help.
Cheers to all