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Just been told i have CH(CLUSTER HEADACHES)There Back

muffinman_84muffinman_84

anybody else suffer from this or know anyone who does?

discuss.

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1
    snowtiger
    Support group here

    http://www.clusterheadaches.com/

    [SIZE=4]This site is devoted [COLOR=#ff0080]completely [/COLOR]and[COLOR=#ff0080] exclusively[/COLOR] to those that suffer from, and to the supporters of those who suffer from [COLOR=#ff0080]Cluster Headaches![/COLOR][/SIZE][FONT=helvetica,arial][SIZE=2][/SIZE][/FONT]
    black gerbil1
    awoodhall2003
    Ooooo I feel for you, that is horrible I suffer from migranes at the moment and for the last 6 months nearly on a daily basis. But cluster headaches can be so much worse, as no way to stop then (sometimes other then pure oxygen) and you feel like your head is imploding.

    I have just had surgery which will hopefully stop my sinus problems causing my migranes as much...but if it does not in the next 4 weeks then I will probably have to go for a cat scan!

    My heart goes out!
    dmissy13
    i don't have these but i have a neurological condition that gives me nerve pain in my head and have had a headache for nearly 6 years now so i feel your pain and send you a big hug xx
    muffinman_84
    i have had the latest bout for about 7 weeks pain like no other it has a nickname called suicide headaches (Nice).

    the doctors have trace it back for 4 years things like ear infection and other miss diagnoses.

    the nights are the worst you have headaches like clockwork so you sort of know when you will get them but cant do nothing.
    tango42
    I suffer with them and found that slow release tramadol helps. ask your doc :) You get side effects for a few days/couple of weeks but if you can put up with it, they help me :) worst side effect for me was itching. all my skin constantly itched and I even dreamt about it! but once that passed, all good now and they arent as bad as they used to be
    muffinman_84
    tango42
    I suffer with them and found that slow release tramadol helps. ask your doc :) You get side effects for a few days/couple of weeks but if you can put up with it, they help me :) worst side effect for me was itching. all my skin constantly itched and I even dreamt about it! but once that passed, all good now and they arent as bad as they used to be


    i have not be told about tremadol by my doctor or the Neurologist they have give me Imigran injection and i will also be given 100% oxygen treatment.
    deb8z
    deb8z3 years, 2 months ago #8Show comment toolsReply
    The ex was put on meds,Inderal i think it was,but it was a long time ago.
    awoodhall2003
    muffinman_84
    i have not be told about tremadol by my doctor or the Neurologist they have give me Imigran injection and i will also be given 100% oxygen treatment.


    I take co-codamol on a nearly daily basis recently, but have Tramadol as well but don't find it work for me as well. Just like I never found Imigran worked for me, different people need different things. Although co-codamol and Tramadol are both codeine products, thus can be highly addictive...and I have probably taken over 300 of them in the past 6 months (of the strongest 30mg type)!
    muffinman_84
    i have been told there are many different treatments, but they work for someone but they dont work for others because the are not 100% sure what the cause of these Cluster Headaches.
    Celticsun
    Horrible horrible things... I really do feel for you!

    Your quack should give you some tablets from the -triptan group.

    I had a bout for 3 months (I was lucky) went for all manner of tests to make sure my brain wasn't rotting (felt like it was pouring through my nose) I was given Sumatriptan and it worked like clockwork 20mins after a major attack I was fine. I used to get mine early evening or first thing in the morning.

    The Key is early prevention as soon as you feel a twinge (used to be an eye twitch, watery eyes or runny nose with me) take a tablet.

    I remember trying all manner of things I was eating Nurofen like sweets until I had a diagnosis and regualr painkillers did Sweet FA!

    Seriously try and get some Sumatriptan on prescription I had no side effects no sickness no dizzy feeling
    dmissy13
    i take 400mg a day of tramadol and have to have a break every few months as it can cause rebound headaches it may take a while to find the right meds for you its often trial and error hope you find your match quickly
    muffinman_84
    Celticsun
    Horrible horrible things... I really do feel for you!

    Your quack should give you some tablets from the -triptan group.

    I had a bout for 3 months (I was lucky) went for all manner of tests to make sure my brain wasn't rotting (felt like it was pouring through my nose) I was given Sumatriptan and it worked like clockwork 20mins after a major attack I was fine. I used to get mine early evening or first thing in the morning.

    The Key is early prevention as soon as you feel a twinge (used to be an eye twitch, watery eyes or runny nose with me) take a tablet.

    I remember trying all manner of things I was eating Nurofen like sweets until I had a diagnosis and regualr painkillers did Sweet FA!

    Seriously try and get some Sumatriptan on prescription I had no side effects no sickness no dizzy feeling


    I was told about triptan have to go see the neurologist again next week might bring it up.

    i have been exactly the same for 6 weeks eating all sorts of painkillers feeling like i am going insane pacing up and down rocking and then it goes.

    yeah i get mine late afternoon about 12-1am and first thing in the morning lasting about 45mins to 1.1/2hrs.
    awoodhall2003
    muffinman_84
    I was told about triptan have to go see the neurologist again next week might bring it up.

    i have been exactly the same for 6 weeks eating all sorts of painkillers feeling like i am going insane pacing up and down rocking and then it goes.

    yeah i get mine late afternoon about 12-1am and first thing in the morning lasting about 45mins to 1.1/2hrs.


    If you were given Imigran that is Sumatriptan.
    Celticsun
    its really is bad, worse than a migrane because its such a concentrated pain in such violent bursts.

    If your doctor has already given a diagnosis of CH there should be no reason he can't prescribe a small amount of Sumatriptan or something similair, at least to keep you going until your Neuro appointment.

    Hope you get it sorted soon mate :thumbsup:
    muffinman_84
    thanks all nice to know i dont have to suffer alone.
    ilovepink
    awoodhall2003
    I take co-codamol on a nearly daily basis recently, but have Tramadol as well but don't find it work for me as well. Just like I never found Imigran worked for me, different people need different things. Although co-codamol and Tramadol are both codeine products, thus can be highly addictive...and I have probably taken over 300 of them in the past 6 months (of the strongest 30mg type)!


    my OH used to take co-proximal (sp) for his headaches but they discontnued them so he now takes co-codamol and tramadol

    have you asked about dyhydrocodeine(sp?)??? side affect to these are though that you can sleep for 1-2 days solid, well OH can anyway only waking for toilet breaks and food

    i can sympathise with you OP my OH suffers badly with headaches his are constant as his brain still suffers aftershocks he has a headache everyday for the last 8 years i think it is now, somedays its bearable other days like today hes gone to bed as he cant handel the pain :(
    awoodhall2003
    ilovepink
    my OH used to take co-proximal (sp) for his headaches but they discontnued them so he now takes co-codamol and tramadol

    have you asked about dyhydrocodeine(sp?)??? side affect to these are though that you can sleep for 1-2 days solid, well OH can anyway only waking for toilet breaks and food

    i can sympathise with you OP my OH suffers badly with headaches his are constant as his brain still suffers aftershocks he has a headache everyday for the last 8 years i think it is now, somedays its bearable other days like today hes gone to bed as he cant handel the pain :(


    Nope I've settled on the co-codamol, was finding them a little addictive to begin with, and i hate taking pills. But now I only take them when needed and have some less strong ones as well now.
    I will not enquire about any other meds as i said i am settled on these, but also praying that the surgery will mean no more migranes as i do not want a cat scan, as just the thought scares me (for obvious reasons).

    Also not sure Id want to sleep for days! Unless I go through insomnia again!
    ilovepink
    awoodhall2003
    Nope I've settled on the co-codamol, was finding them a little addictive to begin with, and i hate taking pills. But now I only take them when needed and have some less strong ones as well now.
    I will not enquire about any other meds as i said i am settled on these, but also praying that the surgery will mean no more migranes as i do not want a cat scan, as just the thought scares me (for obvious reasons).

    Also not sure Id want to sleep for days! Unless I go through insomnia again!


    cat scan is that when you go in the tunnel machine thing??

    OH hates going into those things
    dmissy13
    ct scan is just an xray but if its because you are scared what they will find its best to have it. i have one every 6 months

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