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Urgent Advice Needed - Disabled Grants Etc

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Hi everyone, I will try to keep this as simple as possible. My nephew is autistic, the highest end, he cannot speak or anything and he practically has the same routine every day. He is 16 and has fin… Read More
Bryan839 Avatar
9y, 11m agoPosted 9 years, 11 months ago
Hi everyone, I will try to keep this as simple as possible.

My nephew is autistic, the highest end, he cannot speak or anything and he practically has the same routine every day. He is 16 and has finished at the school for autistic children in brigend. He now has to go to college, however the nearest college for autistic children that the local council says he can go to is in manchester, this would be full time, and visits would be restricted to a few a year. My sister doesnt want him to as they are a close family and he loves being at home. However there is a school that has just opened in brecon beakons but the council wont consider it because it hasnt got approved status and isnt preffered.

My sister has tried loads of options but at the end of the day she doesnt want him to go. She has looked after him for 16 years and loves him. The council doesnt seem to understand that. We have been looking for alternative options, but the bottom line is that she wont be able to afford keep him if he stays home, as some of her benifts will stop.

She is really trying hard, but I am now trying to see what I can do to help, any grants etc, so anyone got any suggestions?

Thanks for any help in advice.
Bryan839 Avatar
9y, 11m agoPosted 9 years, 11 months ago
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#1
He now has to go to college,


Firstly, he doesnt have to go anywhere.

however the nearest college for autistic children that the local council says he can go to is in manchester, this would be full time, and visits would be restricted to a few a year.


Which being autistic and in need of continuity will do him no good at all.

My sister doesnt want him to as they are a close family and he loves
being at home.


Fully understand that.

However there is a school that has just opened in brecon beakons but the council wont consider it because it hasnt got approved status and isnt preffered.


Funny understand that too.

My sister has tried loads of options


Like what? Care to elaborate on the "options" she has tried?

She has looked after him for 16 years and loves him. The council doesnt seem to understand that.


Remember that the council (social services) only see him as a number not as a unique person with needs and wants. Its funny in the respect that the system is supposed to work in the interests of the service user, but in a lot of cases this simply does not happen. Whatever is easier for them is the way it seems to work.

but the bottom line is that she wont be able to afford keep him if he stays home, as some of her benifts will stop.


What reasoning have they given for this?

Depending on his level of autism and his dependancy on others to live, it is possible that he could qualify for Disability Living Allowance (DLA) but I would need lots more information before I could recommend you went down that road as its a long and rocky one which may end up paying dividends, or may not.
#2
Simon G thanks for taking the time to read my thread, you seem to know alot about how these things work. I dont really know the situation in great detail as my sister doesnt tell me loads, I just know the basics, I know that their social worker is a nightmare, and most of the times my sister has gone to see the social worker she ends up coming back more dissapointed than before. She is really down at the moment. He is now home full time at the moment, but he has restbite on saturday, with no school to go to in september. She wants him to go to school, but wants him to come home in school holidays and weekends, but social services have told her the new school in brecon isnt an option even though we have been up to the college and its really nice & they said they would accept him, and they are very flexible.

Thanks
#3
I know that their social worker is a nightmare, and most of the times my sister has gone to see the social worker she ends up coming back more dissapointed than before.


The sad fact of life is that Social Services are taking on a lot of "straight out of Uni" people who are basically nothing more than "box tickers" and have had very little if any true life experiences of the issues they are making judgements on.

He is now home full time at the moment, but he has restbite on saturday, with no school to go to in september.


Have you looked at day centers as apposed to college?

She wants him to go to school, but wants him to come home in school holidays and weekends, but social services have told her the new school in brecon isnt an option even though we have been up to the college and its really nice & they said they would accept him, and they are very flexible.


But it has not been approved, and therefore will get no council funding or recommendations for service users from the council.

16 is a really bad age for someone looking for services. Up until the last year of secondary school, there are numerous resources and services that can be accessed and used. 18 + and again there are loads of services that are avaialbe, however between 16 & 18 there seems to be a void.

I dont know where you are in the country, however in London its pretty bleek, so I would assume outside of the Captial it is even worse.

If you could get Diasbility Living Allowance or some form of grant you could always home teach yourselves, or employ someone for a few hours a day to do the same. It really is just a matter of finding something for the lad to do until he is 18, which is when it will all get so much better for him with regards to the options available to him.
#4
Thanks so much for your help simon.
#5
No problem.

It would be interesting to know what other options she has tried and what the Social Services think about the opportunities if he does not go to college. I'd also be interested to know what and why she would lose benefits if he says at home with her as it is something I have not come acros before.

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