Care home for Dementia patient. Social services allowance not covering fees

13
Found 7th Dec 2017
Hey..

just wanted to see if anyone has gone through this and how the found it, my father has very bad dementia, is incontinent losing the ability to stand etc, we have cared for him at home until now, but now it is obvious he needs specialist care, he has qualified for the full rate of £475 per week, but nowhere charges that little, most places are £650 plus

we asked social services where took their rate, and they gave us 2 places who are of course fully booked with a long waiting list, so then social services said we will need to pay a top up to get him in a home, but we can not afford the £700 a month top up for the cheapest home at £650 who have a space, but social services are like, not our fault, that is how the care system works now...

has as anyone else gone through this? And is there a way we can get them to take ownership and help or are we stuffed
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tryn2help22 m ago

Op says they've been means tested already, I suspect his father's home was …Op says they've been means tested already, I suspect his father's home was not owned by his father, otherwise he would not have got the full allowance; probably lived in rented accomodation.



Yes.... just had some good news, just spoke to Age UK, and they said it is not allowed for social services to say I have to pay a top up fee....apprantely they all do and have done so to me....he said thousands of people are bullied into paying top up fees. Just had a very heated conversation with his social worker who has now admitted they now have to find him somewhere irrespective of fees

downside is I will get no say in where he goes unless I agree to pay a top up fee
Edited by: "Aeschylus" 7th Dec 2017
13 Comments
Is that the nhs funding thing have you been means tested
is there no asset you/dad could leverage to fund the care?
Segata-Sanshiro21 m ago

Is that the nhs funding thing have you been means tested


Means tested for the full amount...which here is £475 a week
davewave13 m ago

is there no asset you/dad could leverage to fund the care?


No, if there was social services would of had it anyway
I just bought a home from someone who had to sell their parent home in order to pay for their parents dementia care.

I think you probably have to "take ownership" as its your dad.

Flog the house is you can, someone will be grateful to move in to it. You will get the weight of your fathers costs off of your mind and he will get the care he needs.
The Alzheimer's Society website is a good start for anything you might wish to know. They also have a section on their website for finding information with finding a care home.

There's also some charities mentioned that might be able to help people in same or similar circumstances as you are experiencing, e.g Independent Age.

There's also Citizens Advice Bureau as well which might be able to help.

alzheimers.org.uk/inf…are
Edited by: "LemonHead" 7th Dec 2017
groenleader30 m ago

I just bought a home from someone who had to sell their parent home in …I just bought a home from someone who had to sell their parent home in order to pay for their parents dementia care. I think you probably have to "take ownership" as its your dad. Flog the house is you can, someone will be grateful to move in to it. You will get the weight of your fathers costs off of your mind and he will get the care he needs.



Op says they've been means tested already, I suspect his father's home was not owned by his father, otherwise he would not have got the full allowance; probably lived in rented accomodation.
Have a look at the following with regards to costs as well and what you might be able to claim if you're having difficulty.

moneysavingexpert.com/adv…des
tryn2help22 m ago

Op says they've been means tested already, I suspect his father's home was …Op says they've been means tested already, I suspect his father's home was not owned by his father, otherwise he would not have got the full allowance; probably lived in rented accomodation.



Yes.... just had some good news, just spoke to Age UK, and they said it is not allowed for social services to say I have to pay a top up fee....apprantely they all do and have done so to me....he said thousands of people are bullied into paying top up fees. Just had a very heated conversation with his social worker who has now admitted they now have to find him somewhere irrespective of fees

downside is I will get no say in where he goes unless I agree to pay a top up fee
Edited by: "Aeschylus" 7th Dec 2017
Aeschylus44 m ago

Yes.... just had some good news, just spoke to Age UK, and they said it is …Yes.... just had some good news, just spoke to Age UK, and they said it is not allowed for social services to say I have to pay a top up fee....apprantely they all do and have done so to me....he said thousands of people are bullied into paying top up fees. Just had a very heated conversation with his social worker who has now admitted they now have to find him somewhere irrespective of fees downside is I will get no say in where he goes unless I agree to pay a top up fee


that's good news, hope it gets sorted quickly.
Aeschylus1 h, 29 m ago

Yes.... just had some good news, just spoke to Age UK, and they said it is …Yes.... just had some good news, just spoke to Age UK, and they said it is not allowed for social services to say I have to pay a top up fee....apprantely they all do and have done so to me....he said thousands of people are bullied into paying top up fees. Just had a very heated conversation with his social worker who has now admitted they now have to find him somewhere irrespective of fees downside is I will get no say in where he goes unless I agree to pay a top up fee


as far as i understand, his assets will need to be used to pay any top up fees. if he has no assets then social services must pay the full fee.

people pay top up if they can afford it to get into a better care home or one nearer to where they live to allow easier regular visits. sorry to hear about your dad, shame he has reached that stage.
mutley110 m ago

as far as i understand, his assets will need to be used to pay any top up …as far as i understand, his assets will need to be used to pay any top up fees. if he has no assets then social services must pay the full fee.people pay top up if they can afford it to get into a better care home or one nearer to where they live to allow easier regular visits. sorry to hear about your dad, shame he has reached that stage.


Thanks

we manage until it was taking 2 of us to change his nappy... 5 years from diagnosis until now, so we have done well.. he just now needs hoists etc...just run out of resources to do it ourselves
Aeschylus3 h, 1 m ago

Yes.... just had some good news, just spoke to Age UK, and they said it is …Yes.... just had some good news, just spoke to Age UK, and they said it is not allowed for social services to say I have to pay a top up fee....apprantely they all do and have done so to me....he said thousands of people are bullied into paying top up fees. Just had a very heated conversation with his social worker who has now admitted they now have to find him somewhere irrespective of fees downside is I will get no say in where he goes unless I agree to pay a top up fee



Exactly what I was going to say, not an expert but the was a TV prog a week or so about this sort of thing.
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