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    What does a key worker do?

    What does a key worker do. I have a 20 month old who might be autistic and i am going through a very stressful time at the moment. Sure start rang me today and said they will assign me a key worker. What does a key worker do?

    38 Comments

    i thought key worker was like a social worker

    I would argue with diagnosis.....20 months old is far too early to diagnose ASD

    No a key worker is a point of contact to start pointing you towards all the help and support you will need in the future if your child does turn out to be autistic. Don't worry as they are there to help you.

    I used to be a key worker when I worked for social services. It is just the main person assigned to you to help you out and offer you support. It is basically your point of contact

    [COLOR="Blue"]What is a "key worker"?
    Police, Nurses, Teachers, social workers, Heath care assistants, Support workers, Cleaners and generally staff who play a crucial role in the social services sector. [/COLOR]
    ]http//ww…rg/

    I would argue with diagnosis.....20 months old is far too early to … I would argue with diagnosis.....20 months old is far too early to diagnose ASD



    Sorry but as someone who teaches 2-5 year olds with ASD I have to disagree. Some children can be diagnosed very young, they can certainly show signs of social and communication impairment which need to be investigated.

    Momofone - as others have said the key worker is there to help and support you. If your child does get a diagnosis of autism, or another form of special need they should be able to assist you and your family. I'm sure that this must be a really difficult time for you and I hope that you do feel that you're getting support. What is good though is that investigations are starting now so that your little one can get as much help and early intervention as possible. All the best.

    a buzz word which changes definition dependant on context...

    Key worker in this sense will be a person who is given your details and responsibility for looking into your daughter's info and to see if there's anyway they can provide you all with help and support xxx

    RBW;7015714

    Sorry but as someone who teaches 2-5 year olds with ASD I have to … Sorry but as someone who teaches 2-5 year olds with ASD I have to disagree. Some children can be diagnosed very young, they can certainly show signs of social and communication impairment which need to be investigated.Momofone - as others have said the key worker is there to help and support you. If your child does get a diagnosis of autism, or another form of special need they should be able to assist you and your family. I'm sure that this must be a really difficult time for you and I hope that you do feel that you're getting support. What is good though is that investigations are starting now so that your little one can get as much help and early intervention as possible. All the best.



    Sorry, but I disagree with you there. Far too many labels these days, and labelling kids at that age doesn't give them any chance, and then parents start to use the label as an excuse for any issues that then may arise.

    As a teacher teaching secondary age kids with ASD, I know that a diagnosis can be easier than others, but how much social development has a 20 month old done in that short time? Enough to make a diagnosis? Enough to put them high up the Spectrum?
    I just think that it is far too early.................we are too quick to put a label to a situation or symptom

    RBW;7015714

    Sorry but as someone who teaches 2-5 year olds with ASD I have to … Sorry but as someone who teaches 2-5 year olds with ASD I have to disagree. Some children can be diagnosed very young, they can certainly show signs of social and communication impairment which need to be investigated.Momofone - as others have said the key worker is there to help and support you. If your child does get a diagnosis of autism, or another form of special need they should be able to assist you and your family. I'm sure that this must be a really difficult time for you and I hope that you do feel that you're getting support. What is good though is that investigations are starting now so that your little one can get as much help and early intervention as possible. All the best.



    bassman_uk;7015848

    Sorry, but I disagree with you there. Far too many labels these days, … Sorry, but I disagree with you there. Far too many labels these days, and labelling kids at that age doesn't give them any chance, and then parents start to use the label as an excuse for any issues that then may arise.As a teacher teaching secondary age kids with ASD, I know that a diagnosis can be easier than others, but how much social development has a 20 month old done in that short time? Enough to make a diagnosis? Enough to put them high up the Spectrum?I just think that it is far too early.................we are too quick to put a label to a situation or symptom



    It is more common for children to be diagnosed with ASD at 24 months or above but it is certainly present in some before that and when it is quite severe, it can be glaringly obvious in some cases.

    Fair points about labels bassman, but there are so many early intervention programmes that are really successful for children with social and communication impairments but the key is early. I certainly wouldn't like to see a child placed at a particular point on the spectrum but investigations can begin at this age, alongside speech and play therapy. It may later be decided that the child had a developmental delay rather than ASD but as much help as early as possible is so important. I really see a difference when children come to me aged 2 or 3 not 5 - we can do so much more at this stage when the brain is developing rapidly.

    Original Poster

    thanks everyone for your comments.... Time at present surely is stressful. I dont know if my son will be able to lead a normal life is he is autistic. Do you people know anyone who is autistic (not aspergers syndrome) and doing well in life?

    Original Poster

    ClarityofMind;7015896

    It is more common for children to be diagnosed with ASD at 24 months or … It is more common for children to be diagnosed with ASD at 24 months or above but it is certainly present in some before that and when it is quite severe, it can be glaringly obvious in some cases.



    What is classed as severe autism? My son does show quite a few symptoms of autism but he is generally a happy little boy who loves playing peekaboo with me. Can that be severe autism. How does one tell if its severe or not? Please let me know thanks.

    Peekaboo is a socialable turn taking game and the sort of thing we'd encourage children to do so great that he can already enjoy this. It's not possible to define long term severe autism in a not yet 2 year old (in my opinion) because although a child may appear severe at this age they can make progress and we can't predict how rapid this will be. What is good is that a possible difficulty has already been picked up and that hopefully he will get lots of appropriate help. Ask your keyworker what services you can access to help him , and you. Good luck during this difficult time.

    Hi mumofone , i have a four year old darling little boy , diagnosed with autism at two. Please feel free to pm if theres anything youd like to talk about . ((hugs to you ))) I know what you must be going through xo

    bassman_uk;7015550

    I would argue with diagnosis.....20 months old is far too early to … I would argue with diagnosis.....20 months old is far too early to diagnose ASD



    My son was referred to child development at 18 months , diagnosed at 24.

    bassman_uk;7015848

    Sorry, but I disagree with you there. Far too many labels these days, … Sorry, but I disagree with you there. Far too many labels these days, and labelling kids at that age doesn't give them any chance, and then parents start to use the label as an excuse for any issues that then may arise.As a teacher teaching secondary age kids with ASD, I know that a diagnosis can be easier than others, but how much social development has a 20 month old done in that short time? Enough to make a diagnosis? Enough to put them high up the Spectrum?I just think that it is far too early.................we are too quick to put a label to a situation or symptom




    "Labeling kids at that age doesnt give them any chance".........what an absolute ridiculous comment to make !!

    "Labeling" my son at the age of 24 months gave my son every chance , gave him access to the intervention that he needed. I i consider myself extremely lucky that these red flags where noticed early on ...what would you suggest that they are ignored ???

    slc76;7021635

    My son was referred to child development at 18 months , diagnosed at 24.



    slc76;7021736

    "Labeling kids at that age doesnt give them any chance".........what an … "Labeling kids at that age doesnt give them any chance".........what an absolute ridiculous comment to make !! "Labeling" my son at the age of 24 months gave my son every chance , gave him access to the intervention that he needed. I i consider myself extremely lucky that these red flags where noticed early on ...what would you suggest that they are ignored ???



    you are obviously one of those parents happy to have a label then. What intervention should take place before school? The amount of kids 'diagnosed' with some label or the other at my school is second to none, and thats only because the 'do-gooders' have nothing better to do, or the parents push it so they can get DLA (not accusing anyone here of it, but in my line of work have seen it soooo often, and it upsets me)
    As a parent of a severely disabled daughter, I would move heaven and earth not to have a label of any kind. She is treated as any other child would be.

    RBW;7019187

    Peekaboo is a socialable turn taking game and the sort of thing we'd … Peekaboo is a socialable turn taking game and the sort of thing we'd encourage children to do so great that he can already enjoy this. It's not possible to define long term severe autism in a not yet 2 year old (in my opinion) because although a child may appear severe at this age they can make progress and we can't predict how rapid this will be. What is good is that a possible difficulty has already been picked up and that hopefully he will get lots of appropriate help. Ask your keyworker what services you can access to help him , and you. Good luck during this difficult time.



    My point exactly

    momofone;7018548

    thanks everyone for your comments.... Time at present surely is … thanks everyone for your comments.... Time at present surely is stressful. I dont know if my son will be able to lead a normal life is he is autistic. Do you people know anyone who is autistic (not aspergers syndrome) and doing well in life?



    i was at a meeting recently with the nas and one of the speakers was a 40yr old autistic man. He was explaining his personal experience of autism to the group and was very communicative, he did really well to describe sucha very intimate and different understanding of the world. You must feel very stressed at the moment, don't worry about the future yet hun, just take one day at a time, let the future look after itself xxx

    ClarityofMind;7027921

    i was at a meeting recently with the nas and one of the speakers was a … i was at a meeting recently with the nas and one of the speakers was a 40yr old autistic man. He was explaining his personal experience of autism to the group and was very communicative, he did really well to describe sucha very intimate and different understanding of the world. You must feel very stressed at the moment, don't worry about the future yet hun, just take one day at a time, let the future look after itself xxx



    hiya

    i am in touch with many people with ASD and some are really quite happy with their lives, whilst others struggle more - just like the rest of the population.

    the thing to never forget is who he is, as its easy to get caught up with "what he has" - and dont let anyone else forget eiher!

    good luck!

    bassman_uk;7024562

    you are obviously one of those parents happy to have a label then. What … you are obviously one of those parents happy to have a label then. What intervention should take place before school? The amount of kids 'diagnosed' with some label or the other at my school is second to none, and thats only because the 'do-gooders' have nothing better to do, or the parents push it so they can get DLA (not accusing anyone here of it, but in my line of work have seen it soooo often, and it upsets me)As a parent of a severely disabled daughter, I would move heaven and earth not to have a label of any kind. She is treated as any other child would be.

    bassman_uk;7024562

    you are obviously one of those parents happy to have a label then. What … you are obviously one of those parents happy to have a label then. What intervention should take place before school? The amount of kids 'diagnosed' with some label or the other at my school is second to none, and thats only because the 'do-gooders' have nothing better to do, or the parents push it so they can get DLA (not accusing anyone here of it, but in my line of work have seen it soooo often, and it upsets me)As a parent of a severely disabled daughter, I would move heaven and earth not to have a label of any kind. She is treated as any other child would be.



    You are obviously one of those parents happy to have a label then .....not even gonna answer that !!!!!

    When you have a child that cant look you in the eye , has no communication ,spins in circles all day , smears crap everywhere , eats soil and toilet paper ....what would be the best thing to do ...oh i know wait till they start school their too young to start helping them, too young for any intervention .

    You seem to come from a very common group of people that belittle the needs of our children, whats wrong is autism too hidden for you ??? not severe enough to have any entitlements???

    bassman_uk;7015848

    As a teacher teaching secondary age kids with ASD,



    Dear luv the kids , glad its not my son with an attitude like that !!

    slc76;7029316

    Dear luv the kids , glad its not my son with an attitude like that !!



    Glad you're not one of the parents I teach with an attitude like yours. you are what we call 'a nightmare!'

    slc76;7029290

    You are obviously one of those parents happy to have a label then … You are obviously one of those parents happy to have a label then .....not even gonna answer that !!!!!When you have a child that cant look you in the eye , has no communication ,spins in circles all day , smears crap everywhere , eats soil and toilet paper ....what would be the best thing to do ...oh i know wait till they start school their too young to start helping them, too young for any intervention .You seem to come from a very common group of people that belittle the needs of our children, whats wrong is autism too hidden for you ??? not severe enough to have any entitlements???



    I actually am from a very understanding group thank you very much, and I think that people with ASD SHOULD (and rightly ARE) entitled to DLA. I think you are missing my point, which is the parents out there who get their children to FAKE severity (and sometimes symptoms of ASD) to get the DLA, so they don't have to work themselves - they see it as an income.

    With any disability, you have to wait until you are 100% sure, and I just think that even at 2 years old, are the experts ACTUALLY 100% sure? it even took us 2 years to get an actually diagnosis of Cerebral Palsy for my daughter, and even with her not hitting the milestones, but the consultants and specialists were umming and arrring. Our Health Visitor actually said she may have it, but that left us distraught, and when we spoke to the Consultants they said there was no way they could make a diagnosis without more time and evidence.

    We did not push for a diagnosis, we have had a lot of Medical Intervention because of the traumatic nature of her birth which left me nearly not only losing a child, but my wife too.
    I totally empathise with other parents who have an impossible situation with such situations such as this, but I question the methods that society uses to do this, seemingly now with less thought and more eagerness to place the label, as it can place such upset and stress on a family, even when it is 100% correct. What would happen if it was just developmental delay in some cases? Would we go American and sue the NHS for misdiagnosis, stress and trauma?

    bassman_uk;7030244

    Glad you're not one of the parents I teach with an attitude like yours. … Glad you're not one of the parents I teach with an attitude like yours. you are what we call 'a nightmare!'



    Nightmare for what??? sticking up for our children that society have a hard time accepting their disability , for sticking up for our kids that are seen as the naughty children that just need a firm hand to put them in place.

    We have just found out my brother who is 3 is autistic, and he has a key worker, who we can call, and comes to our house, she arranges the best places for my brother to go to, i.e nursery that suits his needs better. She also suggests different options for him, like how to handle his little outbursts! Your key worker, will try her best to help your child fit in wherever. Reegan my brother, has now got into a top development centre because of out key worker, and has changed so much from going there. He doesn't have severe autism but he finds it alot harder settling in than other children, and much prefers being played with constantly rather than him going off playing on his own.
    Hope that helps x

    bassman_uk;7030264

    I actually am from a very understanding group thank you very much, and I … I actually am from a very understanding group thank you very much, and I think that people with ASD SHOULD (and rightly ARE) entitled to DLA. I think you are missing my point, which is the parents out there who get their children to FAKE severity (and sometimes symptoms of ASD) to get the DLA, so they don't have to work themselves - they see it as an income.This is not the point you made that i disagreed with , unfortunately parents out there are resorting to this along with any other disability which is absolutely disgusting !The point i disagreed with was your comment "labeling children at that age didnt give them any chance".With any disability, you have to wait until you are 100% sure, and I just think that even at 2 years old, are the experts ACTUALLY 100% sure? it even took us 2 years to get an actually diagnosis of Cerebral Palsy for my daughter, and even with her not hitting the milestones, but the consultants and specialists were umming and arrring. Our Health Visitor actually said she may have it, but that left us distraught, and when we spoke to the Consultants they said there was no way they could make a diagnosis without more time and evidence. I think your letting your experience of going through diagnosis with your daughter blighting what other parIents are going through for a different disability. Your daughters symptoms must not have been as clean cut to go with the cerebral palsy diagnosis straight away.With my son there was not a chance in hell he wasnt on the spectrum , it was heartbreaking an soul destroying hearing your child has autism but at least now we had "the label" to associate what was going on with him, and yes with the label came our access to the speech therapy , occupational therapy , behaviour therapy etc etc that he so badly needed.We did not push for a diagnosis, we have had a lot of Medical Intervention because of the traumatic nature of her birth which left me nearly not only losing a child, but my wife too.I totally empathise with other parents who have an impossible situation with such situations such as this, but I question the methods that society uses to do this, seemingly now with less thought and more eagerness to place the label, as it can place such upset and stress on a family, even when it is 100% correct. What would happen if it was just developmental delay in some cases? Would we go American and sue the NHS for misdiagnosis, stress and trauma?



    I would rather have a misdiagnosis than be left with no intervention , if a child has alot of issues regardless of what label it comes under they still need alot of therapy and help.
    I would rather have had my son sit through hours of speech therapy , ot , etc etc and then be told actually we got it wrong he didnt have autism , it was just a development delay and these therapies have brought him up along with his peers.
    Sue them for misdiagnosis ......id have kissed their blinkin feet!!!

    Original Poster

    thankyou everyone for your comments. I am thinking of putting my lil one in a nursery 1 day a week. do you think it will do him any good. are there any specialized nurseries for autistic children that can offer him more help? ABA treatments? Are they available by NHS. Any luck with any of such therapies? Please advise. Appreciate every1s comments.

    Original Poster

    *katie*;7031482

    We have just found out my brother who is 3 is autistic, and he has a key … We have just found out my brother who is 3 is autistic, and he has a key worker, who we can call, and comes to our house, she arranges the best places for my brother to go to, i.e nursery that suits his needs better. She also suggests different options for him, like how to handle his little outbursts! Your key worker, will try her best to help your child fit in wherever. Reegan my brother, has now got into a top development centre because of out key worker, and has changed so much from going there. He doesn't have severe autism but he finds it alot harder settling in than other children, and much prefers being played with constantly rather than him going off playing on his own.Hope that helps x



    Does he have aspergers syndrome or general autism. Is he able to speak? Am asking because am concerned about my lil ones speech and understanding. Thanks

    Original Poster

    does anyone know of any autistic adults (not aspergers syndrome) who are doing well in life?? I mean have they been to university?? Are they doing good jobs?

    momofone;7037145

    thankyou everyone for your comments. I am thinking of putting my lil one … thankyou everyone for your comments. I am thinking of putting my lil one in a nursery 1 day a week. do you think it will do him any good. are there any specialized nurseries for autistic children that can offer him more help? ABA treatments? Are they available by NHS. Any luck with any of such therapies? Please advise. Appreciate every1s comments.



    You'd need to ask someone who is aware of the facilities and possibilities provided in your local area hun... your "key worker" would be a good place to start xx

    Also take a look at the National Autistic Society's website.... they do some good information leaflets they could send out to you too xxx

    nas.org.uk/

    I personally think it is a very positive step that they are offering you help and support at this young age.

    Please try not to worry too much about the future, take each day at a time xxx

    Original Poster

    bassman_uk;7024572

    My point exactly



    I hope my child shows progression too if it happens....

    momofone;7037183

    Does he have aspergers syndrome or general autism. Is he able to speak? … Does he have aspergers syndrome or general autism. Is he able to speak? Am asking because am concerned about my lil ones speech and understanding. Thanks



    He got tested for everything, he doesn't have asperges, his speech is okay, its slower than boys his age, however he knows everything there is, he has general autism, but apparently when his speech progresses his autism will calm down. Katie

    momofone;7037238

    does anyone know of any autistic adults (not aspergers syndrome) who are … does anyone know of any autistic adults (not aspergers syndrome) who are doing well in life?? I mean have they been to university?? Are they doing good jobs?



    Yes my cousin has severe autism, however now his older you wouldn't know he has it, he has a very high powered job, and is doing fantastic, alot better than people his age without autism. They say alot of children with autism can lead to being very intelligent. It's not necessary a illness in children, as it don't effect there life, and as there is so many forms of it, children can easily grow out of it. I'm sure you have nothing to worry about at all, apparently there is so many children now getting autism , or doctors stating every naughty, or slightly slower children with it with the name.

    Original Poster

    *katie*;7037426

    Yes my cousin has severe autism, however now his older you wouldn't know … Yes my cousin has severe autism, however now his older you wouldn't know he has it, he has a very high powered job, and is doing fantastic, alot better than people his age without autism. They say alot of children with autism can lead to being very intelligent. It's not necessary a illness in children, as it don't effect there life, and as there is so many forms of it, children can easily grow out of it. I'm sure you have nothing to worry about at all, apparently there is so many children now getting autism , or doctors stating every naughty, or slightly slower children with it with the name.



    thanks for reassuring

    momofone;7037663

    thanks for reassuring



    No problems, just saying what I know about my brother, If you need to know anything else, let me know :thumbsup:
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